seizure disorders suck for sure i started having seizures january 2004 grand mal while i slept woke up strap down in hospital bed in and out of consciousness with trouble breathing doctors found a sharp brain wave in right frontal lobe that caused these seizures i refused meds thinking it was fluke wont happen again the next grand mal was much worse six months later learned that if you dont take meds your seiure disorder can get worse every seizure med available does have bad side effects and will change your quality of life it is a medicine that changes how the brain functions to stop seizure from happenin but there is alot of meds so i hope you find one that works for you the study on seizure death guess it would depend on your circumstances the research i have found the number one cause of death with seizure disorder is car wrecks

I have epilepsy and seizures and I hate taking my meds, but I do it. Life sucks with out them! I will admit to going off my meds from time to time, thinking I can do this with out my meds, NOT! I end up having grand mal after grand mal, and doing crazy things, not remembering them, and it is just not worth it. Take the meds, Even if it means trying different ones to find out which ones work best for your life style, good luck, let us know how it goes.

Epilepsy sucks love, but it helps to know there are other to chat to about it!

Dear Richard- I am writing from venezuela, where the first president had epilepsy, and with it he threw out the Spaniards! I know what you are going through- I refused medicines until I had several severe injuries. Now, I am not having grand mals, but the type that Edgar Allan Poe had, from which he wrote his horror stories. Yes, I have the horror-type seizure, and the Lamotrigine was useless- I have to take a bunch of sedatives now in doses that would keep others asleep all day. BTW, the Viagra does not seem to have any problems with the meds, but keep your cardiologist at hand if you take that stuff.
I have the kind of epilepsy that takes away the desire to have sex, but my husband could do 2-3 hours without the Viagra, and he's suffering! He's also doing all the cooking and most work. I just go to the governor's and scream during protests of how we were left without medicines during the 2002-2003 bosses strike that the USA supported here. THAT is what left me with every-day seizures of the horror kind (if I didn't take meds, I'd be falling all the time). THat governor is Chavez's main enemy. I can take beatings from the cops because I can't feel much, and the anti-mutinies are all nicely scared of me. Y'know, epilepsy makes us great war strategists- good for activists. I learned that walking alone as a little child in NYC when mom left me alone to do her shopping. I had seizures all over Manhattan, but they kept me from fearing people, and I was safe!
I love you Richard- you can write me at venezuelanquaker@yahoo.com

Have you heard of glyconutrients for epilepsy? Here are some testimonies about how they have helped.

Asthma/Autism - Pamela Crosby


I want to tell you about how (glyconutrients) affected my life twice. First, my son was born with asthma. Basically he stopped breathing six hours after birth, and that began our life with asthma. He was an asthmatic child. The product was introduced to me for him when he was seven years old. He was on a lot of medication. At that point he was on the maximum dose of medication for a 16 year-old child. We had no place else to go. He wasn’t welcomed in school because he was too disruptive to the other children. He had a lot of allergies.



I gave him the product in May of 1999 and within fourteen days I seen a difference in him. Friends saw a difference in him. Within two months he was off all asthma medication. We had no more asthma medication. It’s amazing. To this day, it’s been 18 months. He hasn’t had an asthma attack. He, at 8 years old, for the very first time, climbed a tree, and I sat there crying because he was climbing his first tree. He learned to ride his bike at 8 years old. He hasn’t missed a day of school because of asthma.



So we had for 6 months in our house – I had three sons – we had a life of health. And then my oldest son who’s autistic went into a severe depression and we were on suicide watch, and the psychiatrist did everything. They put him on Luvox, Paxil, Prozac, and it wasn’t making him better. It was just making him go to the psychiatric unit. So I’d seen the success with Jordan, so we tried it with the oldest son, and he’s on the product.



He’s now in grade 12, going to school every day, out of his depression. He’s happy. He’s smiling. He’s communicating with us. He didn’t communicate with us before. He didn’t like to be touched. He didn’t want us to touch him. He didn’t want us anywhere around him, and we can touch him now, and we can talk to him and he’ll answer us back. He is making a friend at school, and it’s amazing.



Epilepsy - Ellie Sewert



I’d like to tell you first about my son who’s now 20 years old. He became epileptic at 11 years old. We went to the doctors right away with him and they tried some drugs and nothing helped and so we tried more drugs, and higher doses of drugs. Nothing worked. His seizures lasted up to about 6 minutes and it would take him about 24 hours to recover. We finally came to about the end of trying all the drugs after 7 years.



He had been on such high amounts that his bedroom smelled like chemicals, and we live on a hog farm and if he had worked in one of the rooms in the barn and had left, and my husband walked in after, he knew that Matt had been in that room just because he could smell the drugs. If you’re familiar with the side effects of anti-seizure drugs – dizziness, drowsiness, moods, behavior, emotions – and I quote from the last drug he was on – personality deterioration, and it also listed cancer as a side effect. We did notice he had all the side effects except for the cancer, thankfully. He is second oldest of seven children, and when there’s one if the family with personality deterioration, bad behavior, bad moods, it does not make a nice situation.



Well, when we came to the end of trying the things that the doctors had suggested, also he was not a candidate for surgery – the epilepsy was through his whole brain, so that was not an option. I had to look somewhere else and started flipping through the yellow pages, and we started looking into natural things. And Matt did start doing better.



We slowly weaned him off the drugs because we felt there was no sense him being on them. And I should mention the cost as well – we were spending over $6,000 a year on drugs just to see him get worse and poison him. (Glyconutrients) are cheap. And thankfully, last year in June, God sent (glyconutrients) our way. We liked the science that was presented to us, but it impressed it.



We thought we’ve got to get him on these products. The first week we had a much happier son. He was smiling more than we’d seen him smile in years. Within the first 12 months, his seizures were down to 4 to 5 minutes – or 3 minutes duration, with a 4 – 5 hour recovery time. He got the sparkle back in his eyes. He was happier. Things were improving in the home. He was much more pleasant and everybody was getting along better.



He decided he was going to go back to college. When he was on all the drugs, school was a disaster. All of his marks fell – he was failing courses. He did not get his grade 12 diploma. He went and did some tests to get into college as a mature student – did very well on them and he’s now doing very well in college, so we’re really happy about that. He had been out of school for 3 years. The last three months, his seizures have become so mild – he had one before school one day and he got up and went up to school and that never would have happened in the past.



So we’re really, really happy with his progress and I can’t wait to see what the next year is going to bring. And I’ve also been taking the products myself. I couldn’t be giving them to him and not using them myself. My hips have bothered me for about 10 years. They no longer bother me at all. I just to get colds that would drag on for 6 or 8 weeks – don’t get colds anymore. My husband uses the products – he’s always been a healthy guy, and a strong immune system, but he’s seen what kind of things are out there and he’s happy to keep his immune system strong.



My nine year old had asthma, and last winter is the first winter he could go through the whole winter able to breathe through his nose. He was not plugged up at all, even in August during ragweed season, he had no symptoms and that’s last year – August when he was only on the products for about a months. So that was good. Two of our sons did cross country last week, and use the (muscle recovery supplement) and (energy boost supplement) and had great results.





Granmal Seizures - Scott & Kimberley Boyle



About two and a half years ago our son suffered from a real low immune system and he wasn’t doing real well. But I’ll let my wife tell the story. She’s far better at it than me.



In April of ’97 our son experienced his first febrile seizure, and for those of you who aren’t aware of what that is, it’s generally a child who has to have a temperature of between 103 and 105 and they go into a seizure. They’re still conscious but they tremor, and it usually only lasts about 2 minutes. 2 – 5% of the infant population has this, and usually they outgrow it by the time they’re 6 years old.



Our son of course, we were told was atypical in that his seizures, he would completely quit breathing. And his threshold was only 102. If he was teething, he would immediately go to 102. If he was fighting a common cold he would go to 102. So it started when he was 8 months old and we’d lay him down in his crib at night and he was fine, and just has a weird sense and go check on him in the nursery, and he’d be totally gray.



And so, there was really any course of treatment. Drugs would probably stunt this growth and yadayada on that one, and so they just said, “you’re just going to have to deal with it.” So I said, “Let’s look into what we can do to make this better.”



We tried minerals, vitamins, herbs, all organic foods, juicing, raw, everything. Stuff you wouldn’t even smell, my son has drank. And at 11 months old, he had spinal meningitis, and he had a 105 temperatures for 4 days straight. If you’ve ever held a baby on your shoulder at 105 when the doctors are telling you it’s just a virus, and you’re only the mom, and you’re saying, “he’s deathly ill”, it burns your skin. And praise God it happened to be viral and not bacterial, but they just said, this is the course.



For whatever reason, your son just cannot fight these common viral and bacterias. He also had, which is very unusual, athlete’s foot – cracked, painful, oozing. No matter what we tried, his body could not fight anything, and I could give you a list of everything we tried. Nothing worked. The doctor – his pediatrician finally said, “Mom, you have to quit work.” And we had just bought our first little house, and I was in a children’s ministry at our church I dearly loved. But he came with me and we needed to start basically a cocoon program where I am just in the home with him for at least six months to hopefully allow him to get enough rest that his immune could then begin to respond to outside germs.



So we began to pray in earnest that God would send us an answer. And out of the blue, a dear angel friend of ours called me, in answer to our prayers, and said, “I’d like to show you an incredible new technology in a new area of business.” Well we desperately needed the financial help, but our life was Jonathan and I couldn’t focus and neither could my husband, on a business opportunity. And she said, “It’s in the area of health and nutrition, and I’d like to come over with a doctor friend of ours and show you this technology.”



And so I just knew God was sending an answer. However, when the doctor came and looked at my son, and he was typical, he was 18 months at this time, so we had dealt with this for almost a year, of every single month, him being sick for 2 weeks at least out of the month with seizures. He lived on children’s Advil. It was the only product we could give him to try and keep him from having a temperature, and one of his first words was ‘my meme’s’ – my medicine, which is pretty sad.



Anyway, when they came, he had green coming out of his eyes, coughing all night long. We either had him sleep with us or we set the alarm clock for every three hours for a new dose of medicine to make sure he was still breathing. When he came, he also had the athlete’s foot. He showed up children's phytonutrients, and I about laughed him out of my house, because you can’t tell me that these (phytonutrients) are going to heal my son. I said, “It’s a good thing you and I are friends doc, because I don’t know, this is pretty far fetched.” Because we had had many people with their programs in good hearts, trying to help us. And nothing had worked.



And so he said, “Give him two a day, and you’ll be calling me in a week.” And he said, “I would like you to put this gel – it was the Emprizone gel – on his little feet.” In three days, the green was gone from his eyes. In five days, the cough was very sporadic. He was sleeping – color was back. By the end of 7 days, we had a brand new baby boy who is like all 18-month-old boys should be – rowdy, happy, running all over the house. In two applications of (glyconutrient cream) – for 18 months we had tried to cure that athlete’s foot – he was healed in two applications.



And now, next Friday is his fourth birthday, and we’ve had no more hospitalizations, and he’s only seen his physician once for a checkup.

If you need any more info let me know.

Brenda Cooper
coopring05@aol.com