hey casey, i was just wondering if you are still taking those meds?

All the best to you in your new medication-free "management." I also discontinued anti-seizure medication, because it seemed better to risk the seizures than to operate in a perpetual state of sub-consciousness. I've beed medication-free for about five years now, and though I have had seizures, wouldn't go back on the meds--not unless they started becoming a much more frequent occurrence.

Yes, I also get the "spells." I finally found a neurologist I can work with and who supports (though he does not wholly approve of) my med-free approach. He says that these "spells" can be "little seizures" that don't affect the whole body. I also get what I call "onset symptoms"--I feel like I'm about to have a grand mal, but I don't. This now happens to me quite often, and I am learning to take it in stride.

I'm 46 now, and I found out about my seizure condition when I was 25. In those 20 years, many of the medications and surgical procedures that were "highly recommended" in 1985 are now "not recommended." I think it's very important to be conscious and to take the day-to-day recommendations of our profit-oriented, malpractice-phobic medical profession with a very big grain of salt. I check in with my neurologist every year or two to hear about the latest procedures and meds, but it's been a while since I had the impulse to try one!

Managine seizures without drugs requires patience and support, but I really think it's worth it. I've been lucky in the sense that I've been able to work mainly from home. I live in New York City and "onset symptoms" can be kind of scary on a crowded subway!

I hope things work out with you.